VLOGMAS WEEK 1 || life with POTS, EDS, etc. #31 [CC]

I forgot to mention my birthday fundraiser in Claire's name but here's the info:

https://www.facebook.com/donate/21094...
This #GivingTuesday (and for my #birthdayfundraiser) please join me in keeping the late Claire Wineland’s dream and spirit alive. Claire taught me more than I can put into words about life, disability, advocacy, and more. She cheated death and Cystic Fibrosis so many times just to keep teaching, sharing, and loving all of us in the chronic illness community. We all miss her and her wisdom terribly. If we could all be a tenth of the person Claire was, we’d be in a far better world. Claire left a lasting impact on so many of us in the chronic illness community, but her biggest wish was to continue improving CFers (and their families) quality of life; physically, emotionally, mentally, and financially. Claire’s Place will continue to keep her wish going. ❤️🦋 #FUCF #TeamClaire #imissyourgoofyass #butmostlyyourwisdom

Claire’s story: https://www-m.cnn.com/2018/09/03/heal...

Your contribution will make an impact, whether you donate $5 or $500. Every little bit helps. And on Giving Tuesday Nov 27, Facebook and PayPal will match a total of $7 Million in donations. Thank you for your support. I've included information about Claire's Place Foundation, Inc. below.
Our mission is to heighten public awareness about Cystic Fibrosis and improve the quality of life for the families it affects by providing education, life skills, inspiration, and positive support.

HOW TO HELP:
gofundme: https://www.gofundme.com/d58999-shelb...
facebook: https://www.facebook.com/shelbysservi...
redbubble (buy my designs): https://www.redbubble.com/people/agir...
depop (buy my clothes): https://www.depop.com/agirlisariot

Ehlers Danlos Syndrome: http://ehlers-danlos.com/what-is-eds/
Postural Orthostatic Tachycardia Syndrome: http://www.dysautonomiainternational....
Undifferentiated Connective Tissue Disease: https://www.hss.edu/conditions_undiff...

find me:
art blog: http://agirlisariot.tumblr.com/
instagram: https://www.instagram.com/agirlisariot/
twitter: https://twitter.com/agirlisariot

VLOGMAS WEEK 1 || life with POTS, EDS, etc. #31 [CC] spoonie maladie
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People & Blogs Christmas All Over Again	Upload TimePublished on 11 Dec 2018

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